Numbers have an important story to tell. They rely on you to give them a clear and convincing voice--Stephen Few
I have read many stories of crows and associated myths and find them symbolic of the human struggle between good and evil or in a less dramatic fashion--right and wrong. A favorite theme is as a symbol of communication and divination of the future.
At least once in every meeting--there are comments from the podium about the abundance of data. Big data, machine learning, real world data, mobile data, health IT but nary a mention of the utter noise that accompanies most of it.
I review and analyze data at the patient level regularly and have observed the tokenism of including such data in reporting and strategic planning. I recently had the privilege of inclusion in a Value Assessment Frameworks Stakeholder Conference sponsored by International Society for Pharmacoeconomics and Outcomes Research (ISPOR).
I plan on discussing much of the touchpoints in greater detail such as multiple-criteria decision analysis (MCDA), the importance of including trade-offs in patient surveys, and economic cost analytics including budget impact analysis.
The most important topic by far was surrounding the role of the patient in value frameworks and assessments. Stay tuned while I complete the transcription of notes, interviews, and discussions to provide front-row access to better business practices for patient engagement.
Here is a sneak peak (graphic below). There are powerful examples of shared-decision making and patient engagement done right shared by attendees representing industry, medical societies, and perhaps most importantly--patient advocacy groups--stay-tuned!