data&donuts
  • Data & Donuts (thinky thoughts)
  • COLLABORATor
  • Data talks, people mumble
  • Cancer: The Brand
  • Time to make the donuts...
  • donuts (quick nibbles)
  • Tools for writers and soon-to-be writers
  • datamonger.health
  • The "How" of Data Fluency

hello data
I visualize data buried in non-proprietary healthcare databases
https://unsplash.com/@winstonchen

Using your head to improve US healthcare...

8/27/2015

 
Picture
Long before we had decent independent bookstores in our neighborhood, there was a Barnes & Noble. I remember the days when I went to a bookstore and all hardcovers were a percentage discount--staff favorites, bestsellers and then all of a sudden there weren't. Now discounts were only reflected on New York Times bestsellers (homogenized thought) but I think in some respects, they are coming full circle. Although, a long-time bookseller lamented recently, "I didn't sign on to work in a toy store." Looking around the store I see what he means. Adjusting to declining sales in brick and mortar book-selling chains and increased digital competition--the new mantra seems to be "see what sticks" or as my old boss used to say "Put it up the flag pole and see if anyone salutes". Puzzles, stuffed toys, games, and even aisles of preschool toys are among the published relics that once dominated the square footage.

I feel the same away about writing. I didn't become a medical writer to help commercialize drugs, devices, or industry. The good news is that I own the skills. Decision modeling, health economics, biostatistics, clinical medical knowledge, analytics--I now primarily use the skills outside of industry. Imagine if patient populations and healthcare providers were emboldened with the marketing prowess and economic modeling that prevails in medical affairs departments? Yes pharmacodynamic and pharmacokinetic principles are vital to understand how drugs work in our biologic systems but we often confuse pharmacology as health inducing. What we need to understand is the data. What do we really know based on research findings--not misleading headlines.

I will be writing about the 2015 National Conference on Health Statistics in future posts. There is an abundance of relevant information about the health status of the US population, impact of major policy initiatives (ACA), disparities in healthcare, trends in health indicators, as well as recommendations about EHR, quality measures, and population health data. To facilitate the national exchange of health statistics we need to join the dialogue. A surprising absence of representative healthcare stakeholders was evident. I reviewed several peer-reviewed articles that confused the terms below. Why is that important? As you can see here, there are different assumptions that impact data reporting, relevance, and urgency.

A surrogate endpoint is an endpoint observed earlier than the true endpoint (a health outcome) that is used to draw conclusions about the effect of treatment on the unobserved true endpoint. A prognostic marker is a marker for predicting the risk of an event given a control treatment; it informs treatment decisions when there is information on anticipated benefits and harms of a new treatment applied to persons at high risk. A predictive marker is a marker for predicting the effect of treatment on outcome in a subgroup of patients or study participants; it provides more rigorous information for treatment selection than a prognostic marker when it is based on estimated treatment effects in a randomized trial.--Evaluating surrogate endpoints, prognostic markers, and predictive markers: Some simple themes

When we write about healthcare, medicine, economics, and the impact of policies on the healthcare status of our communties, do we understand the data?  Or are we just nailing jello to the wall?
Picture
I am a captain for Right Care Action and even if you don't get involved, perhaps a few of the ideas in the forum can be integrated into your practice environment or educational programs. Join Right Care Action week here. 
Picture

RightCare Action Week is a grassroots initiative for clinicians and others who want to take action that demonstrates how much better our healthcare system can be.

Our healthcare system has strayed from its mission: Healthcare that is effective, affordable, needed and wanted by well-informed patients, and especially, free of clinical decisions that are made with financial or business considerations.

From Oct. 18 to 24, 2015, people like you across the country will take action to show patients that we have not forgotten what good medical care is. Actions can be as simple as taking a deeper social history or doing a house call.

What can you do right now? Sign up for RCAW, vote on actions you’ll support from our growing list of possibilities, or suggest one of your own.


Potential themes or actions that:

  • Highlight the conflict between the healing culture and business culture
  • “Suspend business as usual”
  • Connect patients to clinicians and clinicians to their colleagues to provide better care
  • Encourage clinicians to take as much time as needed with patients
RightCareActionWeek.org is designed so that anyone can suggest or discuss activities on the forum.

The only way to transform healthcare is if we present what better healthcare looks like. RCAW is our chance to do that. Sign up to join us now.

RCAW is an initiative of the RightCare Alliance.

Thoughtful discussions about content development and outcomes analytics that apply the principles and frameworks of health policy and economics to persistent and perplexing health and health care problems

Comments are closed.
    Sign up for our newsletter!
    Picture
    Browse the archive...
    follow us in feedly
    Picture
    Thank you for making a donution!
    donations=more content
    In a world of "evidence-based" medicine I am a bigger fan of practice-based evidence.

    ​Remember the quote by Upton Sinclair...


    “It is difficult to get a man to understand something, when his salary depends upon his not understanding it!”

    Follow the evolution of Alzheimer's Disease into a billion dollar brand
    Picture
Proudly powered by Weebly
  • Data & Donuts (thinky thoughts)
  • COLLABORATor
  • Data talks, people mumble
  • Cancer: The Brand
  • Time to make the donuts...
  • donuts (quick nibbles)
  • Tools for writers and soon-to-be writers
  • datamonger.health
  • The "How" of Data Fluency