But here is why it is important. If you are safely ensconced in Excel spreadsheets and tables--good luck. That data endeavor is manual and labor intensive. You need to rebuild the ship every time you decide to set sail. Not the best use of your time. Data projects rely on open source data and also a seemingly infinite number of non-proprietary data floating around the web. Data brokers have created streamlined solutions by cleaning the data for you and in many cases combining datasets to provide longitudinal analyses.
A little elbow grease though, and you are able to write a little code to update or tidy your date on the fly. As someone who did this manually to create data visualizations for clients--the juice is worth the squeeze. I code in R and Python and the living is easier...
This is also the first week in several, where work won out over running on the trails and training for an ultra-event. Sometimes only able to secure a few hours in the pre-dawn, I use the time to re-enter work life with the scale tipped back toward work. I don't know how you stay on your professional toes but I would be sunk without podcasts whispering insights and ideas into my ears.
In this new world, intellectual property is intellectual monopoly. Monopolies are unjustified and unjust, dangerous both to our economies and our societies. We need new rules for this new, digital world: rules appropriate to the information economy; rules that provide ways to reward innovators and creators whilst preserving fairness and freedom, and which give everyone a stake in our digital future.--The Open Revolution: New rules for a New World by Rufus Pollock
In the video below, Rufus explains how the containerization of shipping automated reduced costs and increased efficiency by an order of > 1000%. Think of data packages as containers for data--once we have standardized data "containers" we have tools to validate, store, search, import, and export data.
The Economist: Babbage podcast is a nice visit with science and technology and an easily assimilated brief audio snap. The namesake of Charles Babbage the "19th-century polymath and grandfather of computing" presents a potential seed of a solution for drug pricing.
In continuing the Rufus Pollock theme--he appears momentarily but discusses the tensions around drug price transparency and monopolies.
A firm supporter of innovation, he recognizes that the big player in tech isn't necessarily the associated gadgetry but the basic rules around ownership. Enterprise, free markets, innovations and inequality depend on rules we combine.
We are operating as if monopolies and patent rights are a single tool and the only solution to rewarding creators for their investments in R&D. I admire the "out of the box" thinking around better solutions to improve access to life-saving drugs.
The book and podcast distinguish patent rights from property rights.
The problem arises when patients will die without access to drugs. If they are priced prohibitively to cover R&D and the marginal cost of manufacturing with one price--fewer drugs are sold and patient outcomes may be quite draconian. But what if, as Rufus suggests, there is a two part payment model--cost of goods has the fixed cost of R&D and cheap marginal cost for medicines relative to R&D.
Innovators can invest or pay for two things separately. Subscription fees pay for fixed cost and manufacturing costs are calculated separately. An enumeration model provides access through a fixed fee to cover R&D and money is allocated to a fund to pay for which drugs get used and how effective they are. No need for government to distribute--only to make sure money is collected. An actual plausible model not trying to be crammed into an outdated framework like US healthcare ecosystem.