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hello data
I visualize data buried in non-proprietary healthcare databases
https://unsplash.com/@winstonchen

New questions to be asked, new mistakes to be made...

12/19/2017

 
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I am not the sentimental sort. I tend to look forward, learning in the moment, not often wistful or rearview gazing. But holy crap what a year. So many people that I love and admire were faced with challenges of sudden losses or new realities to contend with. Our new normal is to crowdsource our health, grief, and losses. As a business, I have no idea how to separate the personal from the professional--often at my own detriment. 

When I turned 40 I celebrated my birthday at The Library Hotel. They boast a collection of over 6000 books organized according to the Dewey Decimal System. Each of the floors of guest rooms are arranged by 10 different themes--social sciences, literature, languages, history, math & science, general knowledge, technology, philosophy, the arts, and religion. Reading and writing nooks abound and if you find the right window you can glimpse the NYC library. The regal lions that adorn the entrance, Patience and Fortitude were renamed in the 1930s by Mayor LaGuardia for inspiration during the Great Depression.
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During a recent visit, I walked through the magnificent NYC library. To this day I listen to the New York Public Library Podcast. You should to--If you look for inspiration and ideas to fuel your daily life. By serendipity, I happened to listen to Muhammad Yunus, a winner of the Nobel peace prize. He describes social business--an alternative to profit driven capitalism. Perhaps a way to create peace between the personal and professional.
I see much to be learned as a social entrepreneur. I left full-time employment for many reasons. But the reason for leaving that I re-visit regularly is the social side. I keep this quote close, "It is difficult to get a man to understand something, when his salary depends upon his not understanding it"--Upton Sinclair. Recent books, Creating a World Without Poverty: Social Business and the Future of Capitalism by Muhammad Yunus dovetailed nicely into Doughnut Economics: Seven Ways to Think Like a 21st-Century Economist. The common thread is the need to look beyond profit and growth as a goal.

I envision the data arm of data & donuts, datamonger.health as a blend of social enterprise and social business. By design it will be profit-generating but also geared toward social impact. Learn-Make-Do are three categories of folders I rely on. Think about it. Most of what bleeds into your inbox should fit into these buckets or just be deleted.

The blog has received quite a few page views over the last year. I don't typically check stats regularly. We all know how to get more hits, visits, or views if that is the goal. Keep writing listicles, misleading headlines, attaboys, and ride SEO glory right to AdSense glory.

Or pretend that all is right with the world of healthcare and medicine. Don't challenge anyone--accept the dogma, and keep the factory open. Don't be surprised when the disease of familiarity  becomes pandemic.
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One of my earliest sustainer memberships was from a physician I admire and respect. He wrote a simple note, "Keep the site ad-free". More joined over the years and I feel accountable to how I spend resources. Most fuels travel to Washington DC and medical conferences throughout the country. Although press credentials gain access, I typically cover my travel and lodging.
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I am thinking of 3 relevant insights from the last few weeks of meetings or travel. I will summarize in a later blog but for now here are a few in no particular order:

1. Datasets are useful for hypothesis generating. Especially if you are relying on real world evidence. But when you want to test your hypothesis? You need to use a different dataset from the one you originally used for your hypothesis.

2. I value 12000 responses in non-probability sampling more than 100 from a probabilistic model. What this means is we don't really have a guide for reaching people or survey respondents. Is their bias in both approaches? Certainly.

3. Survey responses are only episodic determinations. If you want to measure the patient journey, you will need measures that can be tracked longitudinally. I see so many data points that add value for that particular survey administration but have little use in future assessment.

*Bonus--passive data can also be informative. This will be the sweet spot for wearables. Think GPS or activity information regarding movement and activity and how this might correlate with mood, anxiety, or depression...

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    ​Remember the quote by Upton Sinclair...


    “It is difficult to get a man to understand something, when his salary depends upon his not understanding it!”

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  • Data & Donuts (thinky thoughts)
  • COLLABORATor
  • Data talks, people mumble
  • Cancer: The Brand
  • Time to make the donuts...
  • donuts (quick nibbles)
  • Tools for writers and soon-to-be writers
  • datamonger.health
  • The "How" of Data Fluency