I am not alone in relying on Edward Tufte as a guide when first beginning the data journey. Data and Donuts was borne out of a need for health policy discussions, health economics, clinical evidence, research, and the limits of our awareness of cognitive bias and heuristics.
Independent medical writers need an understanding of limits of clinical claims when discussing therapeutic comparators. Health economics relies on data savvy communication and the more informed you can be--all the better.
What a great time to be a communicator or storyteller. You are the bridge between subjective terms like "value" and "benefit"--the data is there ready to be accessed. Numeracy is where all great stories begin. The ability to give an accurate voice to data or at the very least--begin asking better questions.
Important data repositories are being developed. The Project Data Sphere® Initiative is exactly what is needed.
"The Project Data Sphere platform will enable the research community to bring to light previously unrecognized insights buried within vast amounts of cancer clinical trial data," said Howard Scher, MD, Chief of the Genitourinary Oncology Service at Memorial Sloan Kettering Cancer Center. "The benefits of sharing comparator arm data could lead to a better understanding of disease progression and endpoints, and maximize a patient's contribution beyond a single trial to the benefit of others."--press release 2014
The ability to analyze oncology trial datasets from academic and commercial institutions extended to both traditional and non-traditional researchers is relevant to bring a data informed narrative to the forefront of research.
It is definitely an important time for oncology research. When patients are heterogeneous--data silos can be deadly. Thank you Project Data Sphere®.
Thoughtful discussions about content development and outcomes analytics that apply the principles and frameworks of health policy and economics to persistent and perplexing health and health care problems...
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In a world of "evidence-based" medicine I am a bigger fan of practice-based evidence.
Remember the quote by Upton Sinclair...
“It is difficult to get a man to understand something, when his salary depends upon his not understanding it!”