The patient speaks...
I am a restless soul. I run most days, swim and/or run on the others. My husband calls it shpilkes--Yiddish for “ants in your pants.” As a writer, this has energized a work life that could easily become myopic or sedentary both in mind and vision.
Last Friday I actually hopped into my car at 2:30 in the morning to make it to an ISPOR Value Assessment Frameworks Stakeholder Conference later that morning. There is something to be gained by face-to-face interactions and questions asked at the microphone in a room full of colleagues and other healthcare stakeholders.
Typically working as a collaborative partner or consultant, I am asked to write patient surveys or to provide patient level longitudinal insights from large often inter-operable databases. Shared-decision making has echoed its financial opening bell and stakeholders are queueing up to advance profit margins and in certain cases to actually impact patient outcomes in a positive way.
But here is the problem. Patient centric models or frameworks are what we do WITH patients not TO patients. I am hoping to add another voice to the proper design of survey instruments, longitudianl population analytics, and engagement at the place where patients are in their care journey.
By visiting patients in their home, by helping them come to terms with their illness, I could heal when I could not cure--Abraham Verghese
I plan to distill the panel conversations, podium presentations, and Q&A of recent meetings sponsored by ISPOR and NAM in partnership with patient advocacy groups into granular actionable insights. Join the conversation.
Bonny is a data enthusiast applying curated analysis and visualization to persistent tensions between health policy, economics, and clinical research in oncology.